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Handbook for Parents

Table of Contents
When to contact the treatment team

General Information
Diagnosis
Paediatric Oncol. Grp.
Haematology Staff
What Is Cancer?
What Is a Protocol?
How Does Being ...
Tests
Treatment
Taking Care of Your Child at Home
Infection
Side Effects of Cancer
Glossary

Other Links
Mtl. Children's Hosp
Sick Kids - Toronto
Oncolink

TABLE OF CONTENTS

INTRODUCTION

WHEN TO CONTACT THE TREATMENT TEAM

1.0 GENERAL INFORMATION
1.1 Diagnosis
1.2 The Paediatric Oncology Group (P.O.G.)
1.3 Haematology Staff
1.4 What is Cancer?
1.5 What Is A Protocol?
1.6 How Does Being On a Protocol Affect My Child's Treatment?
2.0 TESTS AND TREATMENT
2.1 Tests
a.  Bone Scan
b.  CT Scan
c.  Gallium Scan
d.  Intravenous Pyelogram
e.  Lymphangiogram
f.  Magnetic Resonance Imaging
g.  Lumbar Puncture
h.  Myelogram
i.   Tissue Biopsy
j.  Ultrasound
k. Other Tests
2.2 Treatment
a.  Chemotherapy
b.  Radiotherapy
3.0 TAKING CARE OF YOUR CHILD AT HOME
3.1 Activity and Rest
3.2 Diet and Nutrition
3.3 Taking Your Child's Temperature
3.4 Immunizations
3.5 Medications
3.6 Exposure To Sunlight
3.7 Discipline and Family Relationships
4.0 INFECTION
4.1 General
4.2 Bacterial Infection
4.3 Viral Infection
a.  Chicken Pox
b.  Shingles
4.4 Opportunistic Infections
4.5 AIDS (HIV Infection)
4.6 Helping To Prevent Infection
5.0 THE SIDE EFFECTS OF CANCER AND TREATMENT
5.1 General
5.2 Mouth Sores
5.3 Diarrhoea
5.4 Constipation
5.5 Nausea and Vomiting
5.6 Bone Marrow Suppression
5.7 Pain
5.8 Body Image Changes
a.  Hair Loss (Alopecia)
b.  Excessive Weight Gain or Loss
c.  Skin Rashes
5.9 Other Side Effects of Treatment
5.10 Long Term Side Effects of Treatment
6.0 GLOSSARY OF TERMS
7.0 Other Resources